Appendix II - DRPI Coding Scheme
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Note
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Note: Only the codes whose names appears in all capitals are to be used when coding interviews. The headings Sex, Region, Age Range and Type of Disability should be coded in NVIVO as Attributes, rather than Nodes.
Region
Age Range
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18-25
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26-40
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41-55
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56-70
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71+
Type of disability
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Mobility
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Sensory
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Intellectual
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Psychiatric
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Other
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Human Rights Implications
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Life experiences reported by the interviewee as they relate to key human rights principles
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Discrimination
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Violation or denial of fundamental human rights on the basis of disability
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DISCFAM
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Violation or denial of fundamental human rights on the basis of disability that took place within the family
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DISCSCHO
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Violation or denial of fundamental human rights on the basis of disability that took place at school
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DISCWK
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Violation or denial of fundamental human rights on the basis of disability that took place in workplaces
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DISCSOC
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Violation or denial of fundamental human rights on the basis of disability that took place in society/community
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DISCGVT
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Violation or denial of fundamental human rights on the basis of disability that took place in relationships with public authorities
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POVERTY
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economic deprivation experienced by the interviewee
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Dignity
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impact of particular life experiences on interviewees' perceptions of self-worth
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Pos Dignity
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interviewee reports being respected and valued in her/his experiences and opinions and able to form opinions without fear of physical, psychological and/or emotional harm
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POSDIGFAM
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Feeling respected and valued in the family context
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POSDIGCHO
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Feeling respected and valued at school
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POSDIGWK
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Feeling respected and valued in the workplace
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POSDIGSOC
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Feeling respected and valued in the community/society
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POSDIGGVT
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Feeling respected and valued in relationships with public authorities
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Neg. Dignity
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interviewee reports feeling disrespected and devalued in her/his experiences and opinions and not able to form opinions without fear of physical, psychological and/or emotional harm in consequence of the disability
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NEGDIGFAM
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Feeling disrespected and devalued in the family context
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NEGDIGCHO
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Feeling disrespected and devalued at school
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NEGDIGWK
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Feeling disrespected and devalued in the workplace
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NEGDIGSOC
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Feeling disrespected and devalued in the community and in society at large
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NEGDIGGVT
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Feeling disrespected and devalued in relationship with public authorities
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Inclusion
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Experiences of being recognized as an equal participant and having own needs understood as integral to the social and economic order and not identified as special needs
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Inclusion
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Experiences of being recognized as an equal participant and/or supported in own needs
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INCPHYS
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Experiences of inclusion and access to the physical environment (including transportation)
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INCCOM
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Experiences of inclusion and access to communication with others
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INCEDU
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Experiences of inclusion and access to education
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INCWK
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Experiences of inclusion and access to work
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INCGVT
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Experiences of inclusion and access to public services and authorities
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INCRELIG
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Experiences of inclusion and access to a religious community
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Exclusion
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Experiences of segregation, isolation and/or lack of support to own needs on the grounds of disability
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EXCPHYS
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Experiences of segregation, isolation and/or lack of support in the physical environment
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EXCCOM
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Experiences of segregation, isolation and/or lack of support in communication
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EXCEDU
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Experiences of segregation, isolation and/or lack of support in education
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EXCWK
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Experiences of segregation, isolation and/or lack of support in the workplace
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EXCGVT
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Experiences of segregation, isolation and/or lack of support in relationships with public authorities
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EXCRELIG
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Experiences of segregation, isolation and/or lack of support in the religious community
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Equality
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having own differences respected and disadvantages addressed and being able to participate fully in equal terms
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EQFAM
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having own differences respected and disadvantages addressed and being able to participate fully in equal terms within the family
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EQSCHO
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having own differences respected and disadvantages addressed and being able to participate fully in equal terms at school
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EQWK
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having own differences respected and disadvantages addressed and being able to participate fully in equal terms at work
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EQSOC
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having own differences respected and disadvantages addressed and being able to participate fully in equal terms in the community or society at large
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EQGVT
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having own differences respected and disadvantages addressed and being able to participate fully in equal terms in relationships with public authorities
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INEQUALITY
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interviewee reports a lack of respect for her/his differences, a lack of consideration for her/his disadvantages and not being able to participate on equal terms.
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INEQFAM
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Not having own differences respected and disadvantages addressed and not being able to participate fully in equal terms within the family
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INEQSCHO
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Not having own differences respected and disadvantages addressed and not being able to participate fully in equal terms at school
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INEQWK
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Not having own differences respected and disadvantages addressed and not being able to participate fully in equal terms at work
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INEQSOC
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Not having own differences respected and disadvantages addressed and not being able to participate fully in equal terms in the community or society at large
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INEEQGVT
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Not having own differences respected and disadvantages addressed and not being able to participate fully in equal terms in relationships with public authorities
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Autonomy
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ability to make choices and decisions on issues that affect one’s own life (including choosing forms of supported decision-making)
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SELF-DETERMINATION
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interviewee reports ability to make decisions on issues affecting her/his own life (including choosing forms of supported decision-making)
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LACK OF AUTONOMY
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interviewee reports inability to make decisions on issues affecting own life and/or being forced into situations on the grounds of disability
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Respect for Difference
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reports of how society deals with difference
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BEING RESPECTED
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interviewee reports being respected regardless her/his differences
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BEING LABELLED
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Interviewee reports being labelled in consequence of disability
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BEING DISRESPECTED
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Interviewee reports being disrespected on the grounds of her/his disability or difference
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INCIDENCE
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frequency with which the interviewee reports experiencing discrimination in her/his life
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Responses to Abuse & Discrimination
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ways in which the interviewee responds or has responded in the past to situations of abuse and discrimination
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DISTANCING
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when the interviewee chooses to avoid or distance her/himself from situations and contexts in which she/he has experienced abuse and discrimination
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RESISTANCE
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when the interviewee chooses to keep returning to and or tries to change situations and contexts in which she/he has experienced abuse and discrimination
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REPORT/LEGAL ACTION
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when the interviewee chooses to report or complain about the situation or context in which she or he has experienced discrimination
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Reasons for Not Reporting
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reasons that the interviewee gives for not having reported situations or contexts in which she/he has experienced discrimination
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'NOTHING WOULD HAVE HAPPENED’
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when the interviewee is convinced that report and legal action would not have had any significant consequences in terms of changing situations and contexts of discrimination, including because she/he does not trust authorities.
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LACK OF ACCESS
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when the interviewee was prevented from reporting due to lack of access to appropriate administrative and/or legal structures or lack of access to information about how to proceed to make a claim
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FEAR
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when the interviewee was prevented from reporting for fear of its consequences
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LACK OF FINANCIAL MEANS
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when the interviewee was prevented from reporting due to lack of financial resources
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CORRUPTION
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interviewee did not report because she/he knew or thought that she/he would have to bribe the authorities
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SELF-BLAME
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interviewee did not report because she/he has interiorized feelings of shame and inferiority
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Systemic Roots of Discrimination
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social, political and economic factors that create the discrimination interviewees experience or have experienced in the past on grounds of their disabilities
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ECONOMIC
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When the acts of exclusion and discrimination against people with disabilities are related to the ways in which economic (production) activities are organized and delivered
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SOCIAL
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acts of exclusion and discrimination against people with disabilities are related to the ways in which social (reproduction) activities and social relationships operate and are organized
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LEGISLATIVE
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acts of exclusion and discrimination against people with disabilities are related to the lack of adequate laws or policies to protect their rights and/or to the way existing laws and policies operate
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Recommendations
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suggestions to improve the situation of people with disabilities in your country made by people interviewed
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RAISE AWARENESS
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raise awareness and educate society about disability and how to deal with people with disabilities
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ECONOMIC SUPPORTS
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government supports to improve access to work for people with disabilities
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SOCIAL SUPPORTS
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government supports to improve the living conditions and income of people with disabilities and their families
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REPRESENTATION
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improve the participation and representation of people with disabilities in the government
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RESPECT
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government should show more respect and be considerate of the needs of people with disabilities
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LEGISLATION
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develop and implement new laws and policies to protect the rights of people with disabilities
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PEER SUPPORT
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people with disabilities should get together and support each other
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GENDER & DISAB
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ways in which gender and disability intersect to compound or protect from discrimination
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ETHNICITY & DISAB
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ways in which ethnicity and/or race interacts with disability to compound or protect from discrimination
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CLASS & DISAB
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ways in which class (being poor or rich) intersects with disability to compound or protect from discrimination
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