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Appendix II - DRPI Coding Scheme

Note
Note: Only the codes whose names appears in all capitals are to be used when coding interviews. The headings Sex, Region, Age Range and Type of Disability should be coded in NVIVO as Attributes, rather than Nodes.

Region

Age Range

  • 18-25
  • 26-40
  • 41-55
  • 56-70
  • 71+

Type of disability

  • Mobility
  • Sensory

    • Blind
    • Deaf
  • Intellectual
  • Psychiatric
  • Other
Human Rights Implications
Life experiences reported by the interviewee as they relate to key human rights principles
Discrimination
Violation or denial of fundamental human rights on the basis of disability
DISCFAM
Violation or denial of fundamental human rights on the basis of disability that took place within the family
DISCSCHO
Violation or denial of fundamental human rights on the basis of disability that took place at school
DISCWK
Violation or denial of fundamental human rights on the basis of disability that took place in workplaces
DISCSOC
Violation or denial of fundamental human rights on the basis of disability that took place in society/community
DISCGVT
Violation or denial of fundamental human rights on the basis of disability that took place in relationships with public authorities
POVERTY
economic deprivation experienced by the interviewee
Dignity
impact of particular life experiences on interviewees' perceptions of self-worth
Pos Dignity
interviewee reports being respected and valued in her/his experiences and opinions and able to form opinions without fear of physical, psychological and/or emotional harm
POSDIGFAM
Feeling respected and valued in the family context
POSDIGCHO
Feeling respected and valued at school
POSDIGWK
Feeling respected and valued in the workplace
POSDIGSOC
Feeling respected and valued in the community/society
POSDIGGVT
Feeling respected and valued in relationships with public authorities
Neg. Dignity
interviewee reports feeling disrespected and devalued in her/his experiences and opinions and not able to form opinions without fear of physical, psychological and/or emotional harm in consequence of the disability
NEGDIGFAM
Feeling disrespected and devalued in the family context
NEGDIGCHO
Feeling disrespected and devalued at school
NEGDIGWK
Feeling disrespected and devalued in the workplace
NEGDIGSOC
Feeling disrespected and devalued in the community and in society at large
NEGDIGGVT
Feeling disrespected and devalued in relationship with public authorities
Inclusion
Experiences of being recognized as an equal participant and having own needs understood as integral to the social and economic order and not identified as special needs
Inclusion
Experiences of being recognized as an equal participant and/or supported in own needs
INCPHYS
Experiences of inclusion and access to the physical environment (including transportation)
INCCOM
Experiences of inclusion and access to communication with others
INCEDU
Experiences of inclusion and access to education
INCWK
Experiences of inclusion and access to work
INCGVT
Experiences of inclusion and access to public services and authorities
INCRELIG
Experiences of inclusion and access to a religious community
Exclusion
Experiences of segregation, isolation and/or lack of support to own needs on the grounds of disability
EXCPHYS
Experiences of segregation, isolation and/or lack of support in the physical environment
EXCCOM
Experiences of segregation, isolation and/or lack of support in communication
EXCEDU
Experiences of segregation, isolation and/or lack of support in education
EXCWK
Experiences of segregation, isolation and/or lack of support in the workplace
EXCGVT
Experiences of segregation, isolation and/or lack of support in relationships with public authorities
EXCRELIG
Experiences of segregation, isolation and/or lack of support in the religious community
Equality
having own differences respected and disadvantages addressed and being able to participate fully in equal terms
EQFAM
having own differences respected and disadvantages addressed and being able to participate fully in equal terms within the family
EQSCHO
having own differences respected and disadvantages addressed and being able to participate fully in equal terms at school
EQWK
having own differences respected and disadvantages addressed and being able to participate fully in equal terms at work
EQSOC
having own differences respected and disadvantages addressed and being able to participate fully in equal terms in the community or society at large
EQGVT
having own differences respected and disadvantages addressed and being able to participate fully in equal terms in relationships with public authorities
INEQUALITY
interviewee reports a lack of respect for her/his differences, a lack of consideration for her/his disadvantages and not being able to participate on equal terms.
INEQFAM
Not having own differences respected and disadvantages addressed and not being able to participate fully in equal terms within the family
INEQSCHO
Not having own differences respected and disadvantages addressed and not being able to participate fully in equal terms at school
INEQWK
Not having own differences respected and disadvantages addressed and not being able to participate fully in equal terms at work
INEQSOC
Not having own differences respected and disadvantages addressed and not being able to participate fully in equal terms in the community or society at large
INEEQGVT
Not having own differences respected and disadvantages addressed and not being able to participate fully in equal terms in relationships with public authorities
Autonomy
ability to make choices and decisions on issues that affect one’s own life (including choosing forms of supported decision-making)
SELF-DETERMINATION
interviewee reports ability to make decisions on issues affecting her/his own life (including choosing forms of supported decision-making)
LACK OF AUTONOMY
interviewee reports inability to make decisions on issues affecting own life and/or being forced into situations on the grounds of disability
Respect for Difference
reports of how society deals with difference
BEING RESPECTED
interviewee reports being respected regardless her/his differences
BEING LABELLED
Interviewee reports being labelled in consequence of disability
BEING DISRESPECTED
Interviewee reports being disrespected on the grounds of her/his disability or difference
INCIDENCE
frequency with which the interviewee reports experiencing discrimination in her/his life
Responses to Abuse & Discrimination
ways in which the interviewee responds or has responded in the past to situations of abuse and discrimination
DISTANCING
when the interviewee chooses to avoid or distance her/himself from situations and contexts in which she/he has experienced abuse and discrimination
RESISTANCE
when the interviewee chooses to keep returning to and or tries to change situations and contexts in which she/he has experienced abuse and discrimination
REPORT/LEGAL ACTION
when the interviewee chooses to report or complain about the situation or context in which she or he has experienced discrimination
Reasons for Not Reporting
reasons that the interviewee gives for not having reported situations or contexts in which she/he has experienced discrimination
'NOTHING WOULD HAVE HAPPENED’
when the interviewee is convinced that report and legal action would not have had any significant consequences in terms of changing situations and contexts of discrimination, including because she/he does not trust authorities.
LACK OF ACCESS
when the interviewee was prevented from reporting due to lack of access to appropriate administrative and/or legal structures or lack of access to information about how to proceed to make a claim
FEAR
when the interviewee was prevented from reporting for fear of its consequences
LACK OF FINANCIAL MEANS
when the interviewee was prevented from reporting due to lack of financial resources
CORRUPTION
interviewee did not report because she/he knew or thought that she/he would have to bribe the authorities
SELF-BLAME
interviewee did not report because she/he has interiorized feelings of shame and inferiority
Systemic Roots of Discrimination
social, political and economic factors that create the discrimination interviewees experience or have experienced in the past on grounds of their disabilities
ECONOMIC
When the acts of exclusion and discrimination against people with disabilities are related to the ways in which economic (production) activities are organized and delivered
SOCIAL
acts of exclusion and discrimination against people with disabilities are related to the ways in which social (reproduction) activities and social relationships operate and are organized
LEGISLATIVE
acts of exclusion and discrimination against people with disabilities are related to the lack of adequate laws or policies to protect their rights and/or to the way existing laws and policies operate
Recommendations
suggestions to improve the situation of people with disabilities in your country made by people interviewed
RAISE AWARENESS
raise awareness and educate society about disability and how to deal with people with disabilities
ECONOMIC SUPPORTS
government supports to improve access to work for people with disabilities
SOCIAL SUPPORTS
government supports to improve the living conditions and income of people with disabilities and their families
REPRESENTATION
improve the participation and representation of people with disabilities in the government
RESPECT
government should show more respect and be considerate of the needs of people with disabilities
LEGISLATION
develop and implement new laws and policies to protect the rights of people with disabilities
PEER SUPPORT
people with disabilities should get together and support each other
GENDER & DISAB
ways in which gender and disability intersect to compound or protect from discrimination
ETHNICITY & DISAB
ways in which ethnicity and/or race interacts with disability to compound or protect from discrimination
CLASS & DISAB
ways in which class (being poor or rich) intersects with disability to compound or protect from discrimination

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