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Appendix B: Interview Questionnaire for the Study Called Monitoring the Human Rights of People with Disabilities

STEP 1 – Introductions, Background Information, Consent & Collection of Personal Data

  1. introduction of monitors
  2. review of Project Information Sheet and Free and Informed Consent Form
  3. collection of personal information (proceed with questioning ONLY if consent is given)

Collection of Personal Information

  • Interview Code:
  • Sex:
  • Age Range [check one]:

    • 18-25
    • 26-40
    • 41-55
    • 56-70
    • 71 and older
  • Type of Disability [mark as many as apply]:

    • mobility
    • sensory

      • blind
      • deaf
    • intellectual
    • psychiatric
    • other (specify)

STEP 2 – Asking the Prompting Questions

  1. What are the most difficult barriers or challenges that you face in your life?
  2. Have you been left out or treated badly because of your disability?
  3. Have you been prevented from participating in activities that you wanted to do?

Which prompting question(s) did you use?

Which prompting question(s) was/were most effective?

DEALING WITH ISSUE / SITUATION #1 RAISED BY THE INTERVIEWEE

STEP 3 - Getting Details About the Issue(s) / Situation(s) Raised

WHAT?

  • What happened?
  • How did it happen?

WHEN?

  • When did it happen? (date, time of day)
  • Is it still happening or has it stopped?
  • Is this an ongoing situation?

WHERE?

  • Where did it happen? (if the situation is specific to a location, get city/village, province/state)
  • Did it happen in only one place? In more than one place? (record all of the places)

WHO?

  • What type of person caused the situation? (for example: government official, doctor, bus driver, neighbour)

WHY?

  • Why did it happen?  

REPORTING?

  • Did you report the situation to anyone? yes or no
  • If you did report the situation:

    • What kind of person/organization did you report it to?

      • government official
      • police officer
      • army officer
      • N.G.O. employee
      • religious leader
      • cultural leader
      • ombudsperson
      • other (specify)
    • How did that person react?
    • What action was taken?
  • If you did not report the situation:

    • Why did you not report it?

STEP 4 – Relating the Issue(s) / Situation(s) Raised to the General Human Rights Principles

Dignity

  1. Did you feel:

    • disrespected? or
    • respected? or
    • did respect not have anything to do with the way you felt? What made
      you feel that way?
  2. Did you feel that your feelings were ignored or that no one cared for you?
  3. Did you feel that people were paying attention to you and your needs? Why or why not?
  4. Did this situation make you feel less worthy? Yes or no?

    • If yes, what made you feel that way?
  5. Did you feel isolated in this situation? Yes or no?

    • If yes, what made you feel that way?

Autonomy

  1. Did you feel that you had a choice (or that you made a decision on your own)?

    • yes
    • no
  2. Did you have real options in this situation?

    • If not, what stopped you from having options?
  3. Did you want to make a different decision or did you want to do something else?
  4. Did you have enough information to make that decision?
  5. Did you feel pressured to act the way you did?

Non-Discrimination & Equality

  1. In what way do you think your disability had something to do with what happened?
  2. Do you think that people without disabilities would be treated the same way you were? Why?
  3. Do you know anyone else who was treated in the way you were? Why?
  4. Do you feel that you were treated like you were less valuable than other people in the same situation?

Inclusion

  1. Did your community support you in this situation? If so, how?
  2. Were you separated from people without disabilities? If so, how?
  3. Did you need a service or some assistance so that you could
    participate?

    • If yes, what service(s) or assistance?]
    • Did you receive them?

Respect for Difference

  1. Were you treated the way you were in this situation because people thought you were different? If yes, why?
  2. Do you think that other people would have been treated in a similar way in this situation?
  3. Would:

    • someone of a different ethnicity be treated that way?
    • a woman be treated that way?
    • a poor person be treated that way?
  4. Do you feel that people label you and then treat you differently because of the label?

FOLLOW-UP INFORMATION

  • Is there someone we could contact who saw this happen or who could provide us with more information? Yes or no?

    • If yes:

      • What is their name? (record name on Coding Sheet)
      • Can we contact this person? Yes or no?

        • If yes, what is the best way for us to contact him or her? (record details on Coding Sheet)

POSSIBLE SOLUTIONS, WAYS TO AVOID FUTURE VIOLATIONS

In your opinion, what action(s) should be taken to improve or prevent the situation?

SUMMING UP ISSUE#1

Is there anything else that you would like to say about that issue/situation?

NOW, we are going to return to the issue you raised earlier about (insert brief reference to SITUATION / ISSUE #2)

The same set of questions were then re-asked about situation #2 and situation #3 (depending on whether there was sufficient time within the 2 hour time limit specified for the interview.

STEP 5 – Interview Conclusion

  1. Do you have anything else you would like to add?
  2. Do you have any questions for us?

Thank you very much for your time.

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