Appendix B: Interview Questionnaire for the Study Called Monitoring the Human Rights of People with Disabilities
STEP 1 – Introductions, Background Information, Consent & Collection of Personal Data
- introduction of monitors
- review of Project Information Sheet and Free and Informed Consent Form
- collection of personal information (proceed with questioning ONLY if consent is given)
Collection of Personal Information
- Interview Code:
- Sex:
-
Age Range [check one]:
- 18-25
- 26-40
- 41-55
- 56-70
- 71 and older
-
Type of Disability [mark as many as apply]:
- mobility
-
sensory
- blind
- deaf
- intellectual
- psychiatric
- other (specify)
STEP 2 – Asking the Prompting Questions
- What are the most difficult barriers or challenges that you face in your life?
- Have you been left out or treated badly because of your disability?
- Have you been prevented from participating in activities that you wanted to do?
Which prompting question(s) did you use?
Which prompting question(s) was/were most effective?
DEALING WITH ISSUE / SITUATION #1 RAISED BY THE INTERVIEWEE
STEP 3 - Getting Details About the Issue(s) / Situation(s) Raised
WHAT?
- What happened?
- How did it happen?
WHEN?
- When did it happen? (date, time of day)
- Is it still happening or has it stopped?
- Is this an ongoing situation?
WHERE?
- Where did it happen? (if the situation is specific to a location, get city/village, province/state)
- Did it happen in only one place? In more than one place? (record all of the places)
WHO?
- What type of person caused the situation? (for example: government official, doctor, bus driver, neighbour)
WHY?
- Why did it happen?
REPORTING?
- Did you report the situation to anyone? yes or no
-
If you did report the situation:
-
What kind of person/organization did you report it to?
- government official
- police officer
- army officer
- N.G.O. employee
- religious leader
- cultural leader
- ombudsperson
- other (specify)
- How did that person react?
- What action was taken?
-
What kind of person/organization did you report it to?
-
If you did not report the situation:
- Why did you not report it?
STEP 4 – Relating the Issue(s) / Situation(s) Raised to the General Human Rights Principles
Dignity
-
Did you feel:
- disrespected? or
- respected? or
-
did respect not have anything to do with the way you felt? What made
you feel that way?
- Did you feel that your feelings were ignored or that no one cared for you?
- Did you feel that people were paying attention to you and your needs? Why or why not?
-
Did this situation make you feel less worthy? Yes or no?
- If yes, what made you feel that way?
-
Did you feel isolated in this situation? Yes or no?
- If yes, what made you feel that way?
Autonomy
-
Did you feel that you had a choice (or that you made a decision on your own)?
- yes
- no
-
Did you have real options in this situation?
- If not, what stopped you from having options?
- Did you want to make a different decision or did you want to do something else?
- Did you have enough information to make that decision?
- Did you feel pressured to act the way you did?
Non-Discrimination & Equality
- In what way do you think your disability had something to do with what happened?
- Do you think that people without disabilities would be treated the same way you were? Why?
- Do you know anyone else who was treated in the way you were? Why?
- Do you feel that you were treated like you were less valuable than other people in the same situation?
Inclusion
- Did your community support you in this situation? If so, how?
- Were you separated from people without disabilities? If so, how?
-
Did you need a service or some assistance so that you could
participate?- If yes, what service(s) or assistance?]
- Did you receive them?
Respect for Difference
- Were you treated the way you were in this situation because people thought you were different? If yes, why?
- Do you think that other people would have been treated in a similar way in this situation?
-
Would:
- someone of a different ethnicity be treated that way?
- a woman be treated that way?
- a poor person be treated that way?
- Do you feel that people label you and then treat you differently because of the label?
FOLLOW-UP INFORMATION
-
Is there someone we could contact who saw this happen or who could provide us with more information? Yes or no?
-
If yes:
- What is their name? (record name on Coding Sheet)
-
Can we contact this person? Yes or no?
- If yes, what is the best way for us to contact him or her? (record details on Coding Sheet)
-
If yes:
POSSIBLE SOLUTIONS, WAYS TO AVOID FUTURE VIOLATIONS
In your opinion, what action(s) should be taken to improve or prevent the situation?
SUMMING UP ISSUE#1
Is there anything else that you would like to say about that issue/situation?
NOW, we are going to return to the issue you raised earlier about (insert brief reference to SITUATION / ISSUE #2)
The same set of questions were then re-asked about situation #2 and situation #3 (depending on whether there was sufficient time within the 2 hour time limit specified for the interview.
STEP 5 – Interview Conclusion
- Do you have anything else you would like to add?
- Do you have any questions for us?
Thank you very much for your time.